- from Christy
It's been a few weeks since I posted last. The biggest reason being that I've had a lot on my mind, and I haven't been sure which thoughts should be shared next. Living with this disorder causes me to never be short on emotion. It's overwhelming. My tendency to ramble is EVEN GREATER during these times, and I don't want this blog filled with my vapid ramblings. I also feel a responsibility to "post positive." Mama always said, "If you don't have something nice to say, don't say anything at all." The truth is that I feel completely broken at times while having confidence in knowing that our God is perfectly sovereign in all of this.
The title of this post was inspired by an article a friend of ours posted on facebook recently. It was written by a mom of a child living with Autism. I could relate to her perspective completely, and I felt comfort in knowing that I was not the only parent heartsick over the fact that the children around us are outgrowing our boy.
In an endeavor to let the boys run out some of their energy and have a little added social interaction, I have been taking them up to the Christian school where our oldest two kids attend. Josiah and Jalen both attended school there last year, and it has been nice the past two weeks to visit a couple of days during morning playtime in the gym. Seeing Josiah around children his same age causes me sadness that I have difficulty explaining. I'm sure I'll have this same emotional struggle as Jalen gets older too, but Jalen is still babyish. I'm sure the fact that Jalen is so smart has helped to delay these feelings also.
But it's a different story with my precious Josiah. Seeing him run around with the other five-year-old kids and knowing that they are all potty trained, and talking, and independent, makes me long for these same things for my boy. They will soon be standing in cap and gown at their kindergarten graduations, receiving their diplomas as their parents and family watch with pride. There will be no reserved seats for us on that night. These children will move through elementary school, and high school, and college. They will marry someday and have children. I would be lying if I didn't admit that sometimes I long to stop time. I long to give my precious boy time to catch up. But time just keeps ticking by, and Josiah's development continues to stay frozen.
I allow myself these moments of sadness. The pain is a reality that is best dealt with head on. And, when the moment passes, I see the beauty of my child. He has the most angelic hazel eyes that look deeply into your soul. He loves unconditionally. He has no concept of hate or prejudice. He has never spoken an unkind word. I'm his Mama, and he's my boy. I love him, and I am profoundly proud of him. I pray that I never lose sight of his beauty. The pain of other children outgrowing my sweet boy will always be there, but the joy of him being mine forever will be too.
I should know better than to read this when I have to get ready to go somewhere, like church, especially. I know our kids are different, but this resonates with me strongly. Thanks for sharing your heart. God has gifted you to put even the hard things in a positive light. The last line sums up what I've been praying about lately.
ReplyDeleteGod has given Josiah some wonderful parents, and I know Josiah hasn't said so in the typical way, but I'm sure he is thankful for you and his daddy. Love to the Verrois!
As you well know, Chris, it’s during the times when no answer seems to be in sight that God alone is the answer and tears of dependence can play their part. II Corinthians 1:2-4 “Grace to you and peace from God our Father and the Lord Jesus Christ. Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God.
ReplyDeleteCristy- I find great comfort in knowing that you can relate in so many ways. Your example of faithfulness in the midst of heartache and the unknown is a tremendous encouragement to me. Thank you for reading and commenting. Thank you for loving and supporting.
ReplyDeleteDad (Papa)- I have certainly witnessed God bringing great beauty from ashes, and I am thankful that Jesus uses my times of heartache and tears to make me further dependent on Him. He has always been faithful! I love you!
Was just visiting your blog today. You probably have heard about these but I'll ask anyway. Have you looked into Dream Catchers weighted blankets for bedtime or lap pads? the blanket has made a difference for my daughter. She still has trouble staying asleep but her (9 lb.) blanket has calmed her down a lot at night. Hope this helps. :)
ReplyDeleteMargarete- Thank you for visiting our blog and for taking the time to comment. I have heard of weighted blankets and lap pads. Jeremy and I have thought about getting a weighted blanket for Josiah (Jalen sleeps fine), but he tends to kick his covers off due to getting too hot. I really do think we need to give this a try. Thanks again!
DeleteYes. It's so hard. Even when your five year old IS potty trained and verbal. Autism is sad and it steals from us. We are being outgrown and its okay for us to feel pain.
ReplyDeleteDebby- I know you understand where I'm coming from. I have often thought that having a child on the spectrum that is mainstreamed must have its own set of challenges that I do not have to face at this point in time. Everybody's boy is expected to "keep up" with the typical kids when he faces so many of the challenges of being atypical. Heart wrenching for any Mama indeed. Thanks so much for visiting the blog and sharing!
DeleteChristi- I am late to this blog post (sorry don't know what I was doing!) but this post just brings tears to my eyes and resonates. It's too painful for me to even share, but I am so grateful to you and my other parents of special children who give us all strength during this journey. The pain is cutting, but the joys are tenfold. I do believe that God gave me Koi to show me the true meaning of life, and with His grace I realize that all the "things" I used to worry about just mean nothing. I know when Jo looks at you with those angelic eyes, all is well with the universe. *That* is the true meaning of life. I don't know what the future holds for our kids, but I pray that they find meaning and happiness in the adult world. Being married and having kids is one life- but perhaps there is something greater for Jo, Koi, Peter, etc. etc :-) Love you, and God bless you!
ReplyDeleteWas a beautiful child so cute
ReplyDeleteSorry mean what
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